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Advocacy by and for People with ABI

Brain Injury Network News 

1-7-11
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 12-11-10. The board members are brain injury survivors. The new policies involved the following topics:

Post-Acute Medical Environments, Assisted Living Facilities and Nursing Home Placements for People with Brain Injury; Use of Psychotropic Drugs 

Privacy Settings on Web Sites Designed for Brain Injury Survivors



9-7-10
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 09-04-10. The board members are brain injury survivors. The new policies involved the following topics:


Most People with TBI are Law Abiding Citizens; Incarcerated Criminals with TBI; Societal Norms and Conventions; Conclusions

Local Services vs National Centers; Costly Duplication         

      
These guidelines are posted on the Brain Injury Network web site
under the Public Policy Index Section. Thus far the Brain Injury Network has adopted over 70 public policies that involve issues of importance to the brain injury survivor community.


9-7-10
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 06-12-10. The board members are brain injury survivors. The new policies involved the following topics:

Strokes are not TBI's          

The Subclassification Hierarchy of Acquired Brain Injury (ABI)          

Profiting from Exposing Brain Injury Survivors' Identities   

      
These guidelines are posted on the Brain Injury Network web site
under the Public Policy Index Section. Thus far the Brain Injury Network has adopted over 70 public policies that involve issues of importance to the brain injury survivor community.



6-10-10
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 03-11-10. The board members are brain injury survivors. The new policies involved the following topics:
 
Cognitive Retraining

Community Reintegration

Organizations or Providers Offering Money to People with Brain Injuries or the Families of People with Brain Injuries
 
Raising Money to "Promote" Medical Research 

Sports or Athletics Activities: A Good Mind for Life is more important than a Trophy
 

These guidelines are posted on the Brain Injury Network web site
under the Public Policy Index Section. Thus far the Brain Injury Network has adopted over 60 public policies that involve issues of importance to the brain injury survivor community.


5-6-10
The Brain Injury Network, a USA national and international nonprofit organization operated for and by ABI (which includes TBI) survivors, has prepared a list of criteria that will help survivors assess (evaluate) online brain injury social communities. The article on the subject is available on the BIN website under the section Online Community.


3-19-10
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 12-28-09. The board members are brain injury survivors. The new policies involved the following topics:

Brain Injury Community
 
Third Party Stakeholders

Survivor Advocacy
 
What Makes a Good Survivor Advocate

Best Practice Guidelines for Organizations that Serve the Brain Injury Community

These guidelines are posted on the Brain Injury Network web site
under the Public Policy Index Section. Thus far the Brain Injury Network has adopted over 50 public policies that involve issues of importance to the brain injury survivor community.


12-05-09
The Brain Injury Network, a USA national and international nonprofit organization, is calling for the medical community to adopt a brain injury classification entitled "Post Traumatic Brain Injury Syndrome". See also the Dear Medical Community article and the Post TBI Syndrome Public Policy section.

 


12-2-09
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 09-12-09. The board members are brain injury survivors. The new policies involved the following topics:
 
Clinical Research  

Conflict of Interest in Medical Research 

Patient Recruitment and Covert Devices Online to Recruit Patients to Medical
Research Studies
 
 
Gold Standard Research Studies 
 
Patient Data Harvesting 

Patient Empowerment 
 
Patient Recruitment Methodology Online or through Social Media 

PostConcussion Syndrome 
 
Post Traumatic Brain injury Syndrome, or Post-TBI Syndrome (PTBIS) 

Social Community and On-Line Networking Websites 

Stigma and Brain Injury 

Survivor Community Priorities 

Support Group Facilitation 

The Term "Survivor" 

These guidelines are posted on the Brain Injury Network web site
under the Public Policy Index Section.


9-14-09
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 6-13-09. The board members are brain injury survivors. The new policies involved the following topics: 

Advocate Competency

Advocates: Disclosure of Business Interests  

Bicycle Helmet Law  

Classification of (TBI) Brain Injury to that of a Disease  

Comprehensive Health Reform  

Counselor Training  

Department of Mental Health  

Funding Priorities for Survivors  

Least Restrictive Living Environment  

Mandated Reporter Law  

Medical Device Makers - Reporting Requirement 

Mental Illness  

Psychologist Training  

Post-Secondary Programs  

Post-TBI Syndrome Diagnosis, Research and Treatment  

School Age Children with Acquired Brain Injury  

Skiing and Helmets  

Survivor Social Communities On-Line  

State Brain Injury Survivor Councils  

TBI is a Subset of ABI  


These guidelines are posted on the Brain Injury Network web site
under the Public Policy Index Section.


6-14-09
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 2-20-09. The board members are brain injury survivors. The new policies involved the following topics: 

Assessments 

Helmet Laws 

Locked Facility 

PTSD (Post Traumatic Stress Disorder) 

QEEG (Quantitative Electroencephalography) 

Veterans of the US Armed Forces 


These guidelines are posted on the Brain Injury Network web site
under the Public Policy Index Section.


2-22-09
The Brain Injury Network, a USA national and international nonprofit organization, is pleased to announce that several new public policies were approved by the Board of Directors 10-18-08. The board members are brain injury survivors. The policies involved the following topics: 

Safety First 

Advocacy Agencies for People with Brain Injuries 

Banks and Other Financial Institutions 

Building Code Standards 

Crime 

Doctor Education 

Drug Manufacturers 

Florescent Lighting 

High School Graduation 

Hospital Privacy 

Hospital Settings and Patients 

Human Research Guidelines 

Identification as People

Law Enforcement  

Local and County Community Government Services  

Living Environments  

Post-Secondary Education  

Privacy On-Line  

Removal of Life Support  

Survivor Stories in the Media and on the Web  

Terminology

Universal Health Care  


These guidelines are posted on the Brain Injury Network web site
under the Public Policy Index Section.


 


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