Our main Internet social community is the SABI (Survivor Acquired Brain Injury) Policy and Advocacy Forum. If you are a person who has sustained an acquired brain injury from traumatic brain injury (tbi), stroke, aneurysm, anoxic/hypoxic, tumor or other ABI cause, this may be an online forum of interest to you. The purpose of this forum is to conduct survivor advocacy. If you want to be a survivor advocate and help us continue our tradition of issuing public policies on behalf of the survivor community or if you want to help us with other advocacy efforts undertaken here, please apply to this group.
If you are seeking information and referral, peer support, networking, education, etc. we recommend you join one or more of our Facebook groups (as indicated below under Facebook groups.)
In all cases we recommend that you set privacy controls to protect your confidential and personal information on any web site or social community on the Internet. We are actually one of the few organizations that recommends that you not share your story on open (third party accessible) web sites and communities. We believe that your information should belong to you, not any web site or social community.
FACEBOOK GROUPS
Important notice: Please make sure that you look over your privacy settings when you are in Facebook. Set the privacy settings to protect your own privacy. The defaults on Facebook and other places generally allow for a great deal of sharing of your content and information to third parties. You can overrule these settings and opt for more privacy. We recommend that you do so.
We have a TBI Network - Brain Injury Network page on Facebook which links to support groups we have on Facebook and also links to some other activities of our network. Please log on to your Facebook account and search for TBI Network - Brain Injury Network in the Facebook search box to access that page as it is a good way to access our groups on Facebook. Or, you can access that community page by clicking on the red poppy flower below.
TBI NETWORK Brain Injury Network Community Page on Facebook
Additionally, you can access a specific Brain Injury Network Facebook group by logging in to your Facebook account and searching for the particular group by name. Using the key phrases below in the Facebook search box is a way to see the great variety of groups that are on Facebook. We recommend that before enrolling in a particular group on Facebook you at the very least investigate if the group is a public, private or secret group. We recommend that for security's sake you join only the private or secret groups. (But you also want to assess groups in other ways, for example, you want to see who operates the group and try hard, try very, very hard, to only select groups that appear to be trustworthy, although there is no guarantee about the merit or motives of groups that are on the Internet. So, always be careful which ones you join.) Now, here is a list of the support groups we at BIN have on Facebook.
Acquired Brain Injury (ABI) is for people who have sustained some kind of acquired brain injury from such causes as aneurysm, anoxic or hypoxic brain injury, brain illness, brain toxicity, stroke, traumatic brain injury, etc. This is a support group and includes chat. Survivors only. Search the term on Facebook to locate the group. The picture for the group is red poppies.
Traumatic Brain Injury (TBI) is a Facebook group for people who have sustained a traumatic brain injury. This is a support group and includes chat. Survivors only. Search the term on Facebook. The picture of the group is tulips in a bucket.
Survivor Acquired Brain Injury (SABI) on Facebook is an information page. Survivors only. Search the term on Facebook to locate the group. The picture is a sailboat.
Acquired Brain Injury Requiring Assistance (ABIRA) on Facebook is a support group for people who have sustained an acquired brain injury (which includes traumatic brain injury, stroke, anoxic injury, etc.) who need assistance using the computer to be online. This group includes chat. Survivors and family caregivers only. Search the term on Facebook to locate the group. The picture is of a bridge going to mountains.
YAHOO GROUPS
Important notice: Several of Brain Injury Network's groups are Yahoo groups. The Yahoo default allows Yahoo to share information about you to third parties. Make sure to set your Yahoo profile settings to private ones if you do not want Yahoo to share information about you (including your messages in Yahoo groups) to third parties. Go to http://profiles.yahoo.com/ to set your preferences.
Brain Injury Network operates one Yahoo! group brain injury forum to discuss public policy and advocacy for our community. Survivor Acquired Brain Injury (SABI) Public Policy and Advocacy Forum is for survivors only.
We also operate the Acquired Brain Injury Requiring Assistance (ABIRA) Yahoo group forum, for survivors who need a caregiver or friend to help them to be on the computer. Thus, ABIRA is open to survivors and caregivers.
Additionally, we have created the Acquired Brain Injury and Youth (ABIANDY) Yahoo group forum to specifically address young people with abi. (If you are a parent or legal guardian of a minor with an abi, please email us for further information about ABIANDY on our private Guest Book.)
