Notice: Make sure your Yahoo profile settings are private. For example, in Yahoo groups, change the default setting in your Yahoo profile which allows Yahoo to share information about you to third parties. Go to http://profiles.yahoo.com/ to do that. Instruct Yahoo not to share your information.
This is the SABI introduction page. You can click on the SABI sailboat above here to the right, and go direct to SABI. Or, if you want some step by step directions, you can read through the directions below. The directions below are handy if you don't already have a free yahoo account and want to know about all of that. Once you go through the SABI sailboat portal either above or below, if you don't have a yahoo account you will have to set one up to join SABI. This is because SABI is a yahoo group. (It is free to set up a yahoo account.) You will also have to fill out the SABI yahoo group application that appears on your computer screen. (All yahoo groups require the application.) It doesn't take too long. However, if you have trouble figuring it out, here are some general directions. So read through this, perhaps print this page up if you need to, and then go through the steps.
1. Click on the "Be transported to SABI" button (below). You should be on a page that says survivoracquiredbraininjury at the top left. Look to the right. Click on the blue box that says JOIN THIS GROUP!
2. This is a moderated yahoo group, so now you have to fill out the application that is on your computer screen. There are five more steps.
3. Step One: Fill in "comment to owner". You can say something like, "Hi, I'm a survivor, and I want to join this SABI group." Then say a little more about you.
4. Step Two: Select the kind of message delivery you want. (I would pick individual email, but there are other choices.) If you pick individual email, you will get all the emails on the site in your email inbox everyday. If you pick "daily digest", you will get one big email a day that includes many posts. (It's a little like a newspaper.) If you select "special notices" you will only get the occasional email from the moderator. If you select "no email", you will not get any emails from SABI in your inbox. You will have to go to your yahoo groups or to http://health.groups.yahoo.com/group/survivoracquiredbraininjury to look at the posts directly online.
5. Step Three: Select your message preference. (I would pick "fully featured", but there are other choices.)
6. Step Four: You have to "decode" the funny text box. Type in what characters you think you see. If you miss, try, try again. (I have to try again on those all of the time. It is often not clear to me what the letters are.) They keep giving you new ones until you get it.
7. Step Five: Scroll down a little. On the right there is a blue box that says JOIN. Click on it.
8. After this point your message will come over to SABI. We at SABI will communicate back with you from there.
I hope this works for you. If not, we can keep trying to figure it out. Thanks for trying.
Sincerely, rightysabi1985 owner/moderator of SABI
Introduction to Survivor Acquired Brain Injury (SABI)
The Brain Injury Network operates the advocacy forum, SABI (Survivor Acquired Brain Injury.) First, there are plenty of good survivor support groups, Internet chat rooms and Internet groups for survivors. So why this one? We want views from one group, the survivors, on one thing, issues of importance to our collective brain injury survivor community. Let us promote discussion between survivors about broad advocacy issues. It was our little survivor organization here in Sonoma County, California that got talking about criminal conduct in a college program for people with brain injuries, that got us going on national standards for college programs. We would like to see what kind of consensus we can build, in addition to lobbying for national standards for college programs, in other areas that impact upon our whole brain injury survivor community.
Survivor, It's your perspective we want to know about. It's your perspective, and yours alone, that we want to share with the world. There are plenty of organizations that advocate for us, but at the same time they also advocate for other stakeholders such as service providers, caregivers, professional associations, school systems, medical institutions, personal injury attorneys, the rehabilitation industry, etc. We want the survivors' pure views. We have already seen in our local group that even among survivors there can be many differences of opinion. ("Right to life" verses "right to die" for people in the persistently unaware state comes to mind.) But perhaps we can find that there are issues upon which we can fashion a collective viewpoint and an advocacy agenda.
So, our forum, SABI, focuses on survivors' views on advocacy related topics. If you are a survivor of acquired brain injury, please visit our SABI group. Perhaps you would like to join and have your say on an ongoing basis. If you get comfortable here it will help others get comfortable. It might even help some of us get comfortable with the world. And we might collectively be able to do some good. That's what it's about.
