We survivors here at the Brain Injury Network are survivor of brain injury advocates for our brain injury survivor community. We have decided to become vocal about our issues, because too many agencies that are supposedly there advocating for us and in our name have failed to adequately address many of our issues. We have developed position statements in the form of public policy pronouncements regarding many topics.
Just to highlight, here are some of the many issues that we are addressing:
The need for National Post Secondary Program Standards for College Programs for Adult Students with Brain Injury.
The need for Mandated Reporter National Legislation for college employees who work with adult students with tbi who are attending college.
The need for a consistent definition of the terms “traumatic brain injury” and also “acquired brain injury”.
The need for strict adherence online to already established guidelines in re human research.
The emergence of troubling patient data harvesting and other privacy violations in some social communities online.
The need for the creation of a category entitled “Post-TBI Syndrome”.
The need for survivor councils and/or survivor participation on Boards of Directors of brain injury associations and other so-called survivor advocacy organizations.
In conclusion, we are interested in advocacy, human rights, and political action. Please view our public policy advocacy section to read further about our issues. And if you are a survivor and you want to become a survivor advocate for the brain injury survivor community, please come join us!
